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Executive Committee

Sharon F. Terry, Chair,
Genetic Alliance

Cynthia Pellegrini,
American Academy of Pediatrics

Derek Scholes,
American Heart Association

Joann Boughman,
American Society of Human Genetics

Timothy Leshan,
Brown University

Marla Gilson,

Barbara Harrison,
National Society of Genetic Counselors

Jeremy Gruber,
Council for Responsible Genetics

President Bush Signed GINA Into Law!

On May 21, President George W. Bush signed the Genetic Information Nondiscrimination Act (GINA) of 2008 into law. We continue to celebrate this monumental event as the culmination of thirteen years of dedication and perseverance from over 500 members of Congress, hundreds of organizations, and thousands of individuals who stood in support of GINA.

Senator Ted Kennedy applauded GINA as "the first civil rights bill of the new century of the life sciences." GINA provides protections against genetic discrimination in both the health insurance and employment settings. The health insurance provisions of the bill, Title I, will take effect 12 months after the date of signing, on May 21, 2009. The protections in employment, Title II, will take effect 18 months after the date of signing, on November 21, 2009. These protections will apply to residents of all 50 US States and territories

Congratulations to all!

What Does GINA Mean? A Guide to the Genetic Information Nondiscrimination Act
This tool provides a functional outline of GINA's protections and how the legislation impacts every individual in the nation. The resource includes a history of the legislation, hypothetical situations of genetic discrimination, and key examples and definitions. We encourage individuals and organizations to utilize the guide either as a resource for answering questions or as a flexible tool to adapt and customize within your community.

Read the full press release on this new GINA web resource.

Additional GINA Resources

The Long Road to Passage

arrow icon View a detailed account of the status of GINA from January 2007 up to the date of passage.
arrow icon History of GINA
arrow icon Genetics Day on the Hill
arrow icon Why We Need GINA


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